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Homeschool FA Mom

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Navigating Friedreich’s Ataxia

Jessica

  • Kind People

    What’s the kindest thing someone has ever done for you? I remember our first cruise after my diagnosis (FA) It was Disney Cruise Line I remember all the helpful employee Everyone asked to help in some way I remember the tears that quickly came Yes, every step was hard Just knowing that there was no… Read more


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  • Homeschool Mom

    If the salary was the same, what job would you be doing right now and why? By far the best thing I have ever done I enjoy spending time daily with my kids We have slow mornings (since FA) It doesn’t pay a lot The memories are all the payments I will ever need Read more


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  • Flying high

    What’s the best and worst airport you’ve been to? Best: Vancouver On our cruise to Alaska, we left from Vancouver Clean Not overly crowded Good restaurants Beautiful room inside the airport Worst: Seattle Very very busy Restaurants were packed Very large Read more


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  • It’s okay to be different

    What’s the best advice you’d give to someone younger than you? Be different Do what makes you happy Don’t worry what others think People will always talk about someone You’re not perfect No one else is Be yourself Read more


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  • Physical Therapy

    What’s the bravest thing you’ve ever done when no one was watching? This was a huge insecurity for me I went 3 times a week for 6 months I didn’t tell anyone I just wanted to walk better Now that I know where the balance problem is coming from, I keep trying I don’t want… Read more


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  • Favorite Apps

    What are your favorite 5 apps on your phone? Quick books (allows me to work anywhere) Number Match (keeps my mind sharp) Camera (I can have lasting memories) Walmart (I can order groceries for delivery) Zen Hole (helps maintain coordination) Read more


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  • Best year

    If you could relive one year of your life, which one would it be? I can’t imagine a different time than now. I don’t want to live a year without my kids and husband Sure, high school was fun College was great Band years were awesome Vacations have been fantastic I have medical limitations now,… Read more


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  • Take the Vacation

    What’s something you do completely differently from how you were raised? We have a minimum of 2-3 vacations scheduled each year We take day trips monthly Quality time with the family is prioritized Read more


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  • Rubber Duck

    What’s the best thing you’ve ever found randomly on the street? Driving down the highway, my husband flies into the turning lane. He hops out of the car and runs several yards. He picks up something and returns to the car. It’s a dirty rubber duck. …..Cruise booked….. Read more


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  • Chunky Knitting 🧶

    Share a hobby you’ve picked up recently — what got you into it? I recently started knitting with chunky yarn. I noticed I had a little free time. I seen someone make a post on Facebook. I thought “I can do that” Read more


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